🎊 THANK YOU for an amazing #A3experience🎊!! None of this could have been possible without YOU! 🤩 This experience brought together members of the #liver community who share a passion for improving #liverhealth and want to make a real impact as #advocates. We can't wait to see new and familiar faces as we prepare for A3 2024! #liverstrong #liverdisease #livercommunity #livertransplant #transplant #organtransplant #health #community #patient #WashingtonDC
Global Liver Institute
Wellness and Fitness Services
Washington, District of Columbia 5,269 followers
It all starts with a patient
About us
Global Liver Institute (GLI) is a 501(c)3 nonprofit organization founded in the belief that liver health must take its place on the global public health agenda commensurate with the prevalence and impact of liver illness. GLI promotes innovation, encourages collaboration, and supports the scaling of optimal approaches to help eradicate liver diseases. Operating globally, GLI is committed to solving the problems that matter to liver patients and equipping advocates to improve the lives of individuals and families impacted by liver disease. GLI holds Platinum Transparency with Candid/GuideStar, is a member of the National Health Council, and serves as a Healthy People 2030 Champion.
- Website
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http://www.globalliver.org
External link for Global Liver Institute
- Industry
- Wellness and Fitness Services
- Company size
- 11-50 employees
- Headquarters
- Washington, District of Columbia
- Type
- Nonprofit
- Founded
- 2014
- Specialties
- health communications, health policy, health information technology, health system design, coalition building, strategy, liver health advocacy, Liver Health, Liver Disease, and Patient Advocacy
Locations
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Primary
1875 Connecticut Ave NW
10th floor
Washington, District of Columbia 20009, US
Employees at Global Liver Institute
Updates
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OU Health completed #Oklahoma's first #livertransplant to treat an aggressive form of #bileduct cancer. The new service could provide options for some #patients who will no longer have to leave the state to receive care. Now, eligible Oklahomans can be placed on a #transplant waitlist and can receive one once they match with a donor. Only about 20 % to 30% of patients can receive surgical treatment because the disease is usually too advanced when they receive a diagnosis. Dr. Narendra Reddy Battula, a #transplant surgeon at OU Health, said the operation requires a lot of planning, including factors like the availability of #donor organs and whether patients can take the anti-rejection pills after they receive the transplant. Battula said he’s glad OU Health is providing other Oklahomans with an option that can significantly improve their survival rates. He said the transplant is an achievement for the #cancer center, which used to have to refer patients to specialists in Texas. “It's a serious disease, and time is of essence, and I think they should be served better at their local hospitals,” Battula said. https://lnkd.in/g-ruycmu #transplanttuesday #transplantation #organtransplant #liverhealth #liverdisease #raredisease #donatelife
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The House Ways and Means Committee marked up obesity legislation, moving the ball forward for Congress to act on coverage for Medicare beneficiaries. GLI solicits signatures on a petition to insurers to provide access to NASH/MASH treatment. Highlights include: 1️⃣ GLI Celebrates Biomarker Legislation Advancing in States 2️⃣ Obesity Coverage Advances in the House 3️⃣ House Advances Bill Covering Cancer Early Detection Learn more & join us in supporting agency efforts & urging Congress to advance priority bills ⬇️ 📚: https://lnkd.in/gZKH2J5X #LiverHealth #PatientAdvocacy #Congress #health #publichealth #liver #livercommunity #livercancer #advocacy
Obesity legislation on the move, GLI continues to fight for access to NASH/MASH treatments – Liver Health Policy Update
https://globalliver.org
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Global Liver Institute reposted this
With proper treatment, people with Wilson’s disease can live long, healthy lives. However, they often experience unacceptable gaps in care and systemic barriers that prevent them from accessing support. Advocates for Wilson’s disease play a crucial role in engaging with policymakers, and calling for changes to ensure people living with the condition receive the care they need. Today the Wilson’s Disease Policy Network, for which The Health Policy Partnership (HPP) acts as secretariat, has launched a toolkit to support Wilson’s disease advocates in demanding policy change. The toolkit comprises a suite of resources developed with Network members which aims to help advocates around the world identify, plan and deliver their goals. Inspiring and educational case studies on successful initiatives – from awareness-raising walks to meetings between policymakers and people with Wilson’s disease – have also been included. The toolkit builds on the Network’s prior work from 2023, which identified six priority policy areas that needed to be addressed to improve access to care and support. This work was endorsed by eight specialist organisations, including the Global Liver Institute and the European Liver Patients' Association - ELPA’ Association. The full toolkit can be accessed below: https://lnkd.in/eTCxpEP8
New toolkit supports Wilson’s disease advocates’ call for policy change to improve care
healthpolicypartnership.com
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In #France, 80% of new #livercancer cases occur in men. Unfortunately, it's often diagnosed late because symptoms are silent until advanced stages, with only 25% caught early enough for a cure. The rise in #liver cancer cases in France is closely linked to #cirrhosis caused by excessive alcohol consumption in most instances. Drawing from a wealth of studies and the perspectives of community experts, GLI's "Global State of Liver Health" report defines and analyzes the landscape of #LiverHealth around the world. 🌍 #LiverHealthisPublicHealth #PublicHealth #LiverHealth
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Global Liver Institute reposted this
🔔🌍Every year, millions of families are affected by viral #hepatitis because they don’t have access to the testing, treatments or prevention they need. It’s #TimeforAction. Join the fight on #WorldHepatitisDay 28 July 💪 >> https://bit.ly/4cEuXCB
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Earlier this month, Global Liver Institute CEO and Founder, Donna Cryer, was a panelist at AcademyHealth's 2024 Annual Research Meeting's "Advancing Research to Improve Healthcare Equity" in #Baltimore, Maryland The panel detailed the importance of: 1️⃣ patient-centered organizations 2️⃣ the research uniquely combining high-value care and equity rather than treating them as separate issues 3️⃣ accountability and governance included in said research -- so the field could improve the implementation of research results while encouraging partnerships between health systems and other organizations. #Globalpolicy #liverdisease #patientadvocacy #livercommunity #healthcare #equity #health #advocacy
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📢2 months to go for our Advanced Advocacy Academy (A3)! Want to enhance your #liverhealth knowledge & advocacy skills? Apply now to GLI’s Advanced Advocacy Academy (A3): 📆 Sept 13-16 🎤 LIVE discussions & workshops 📢 Hill Day 📖 GLI Liver AdvoKit™ #advocacy guide 🤗 Meaningful connections 🎓 Graduation and more! ✍ Apply now: https://lnkd.in/eFR3-weM #A3Experience #liverstrong #livercommunity #LiverAdvocate #liveradvocacy #liver #AdvancedAdvocacy
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How can we encourage a healthier #lifestyle and overall better #publichealth and well-being? Play, read and VOTE! 🧸📚🗳 Voting ensures your voice will be heard as you #advocate for a better life full of #health and wellness. By voting, you have the chance to 1️⃣ Support leaders who chamption #health 2️⃣ Advocate for meaningful change 3️⃣ Make a difference in your community In a major election year throughout the world, raise your voice as a vote for #liverhealth Chris Chanyasulkit, PhD, MPH #liver #livercommunity #liverstrong #patientadvocacy #healthcare #advocacy #vote #voting #government #change
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Exciting news! Livmarli by Mirum Pharmaceuticals, Inc. has been approved in the EU for treating progressive familial intrahepatic cholestasis (PFIC) after recent approvals in the US for patients 5 years and older and previously for Alagille Syndrome. This milestone ensures that #PFIC patients, especially children, receive the care they need for cholestasis and itch. Now approved for children as young as 3 months in the EU, we hope that continued patient advocacy and thoughtful regulations will make Livmarli available in other countries, like the US, for younger patients. #PFIC #Mirum #RareDiseases #patient #health #healthcare
We’re thrilled to announce that LIVMARLI® (maralixibat) oral solution has received European Commission marketing authorization for the treatment of PFIC in patients three months and older! For more information, read the press release: https://bit.ly/4eWTzsq