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A fact from Myalgic encephalomyelitis/chronic fatigue syndrome appeared on Wikipedia's Main Page in the Did you know column on 12 April 2024 (check views). The text of the entry was as follows:
The following is an archived discussion of the DYK nomination of the article below. Please do not modify this page. Subsequent comments should be made on the appropriate discussion page (such as this nomination's talk page, the article's talk page or Wikipedia talk:Did you know), unless there is consensus to re-open the discussion at this page. No further edits should be made to this page.
Yes, the QPQ check tool to the right counts only 9. I don't really trust the QPQ tool that much because it barely counts 40% of my own nominations. But If the nominator feels that they have done less than 20 noms this can go forward or they can do the double. This case is on the honor system.-TonyTheTiger (T / C / WP:FOUR / WP:CHICAGO / WP:WAWARD) 18:48, 17 March 2024 (UTC)[reply]
The tool gives a complete list of the nominations made by Femke since she started editing in 2014. It does not pick up nominations made before 2011, but that is not relevant here. TSventon (talk) 20:11, 17 March 2024 (UTC)[reply]
Reviewing some newly published sourcing, I've noticed that our management section is not quite comprehensive, and I think that's because much of it can't be shoe-horned into the current structure. For instance, fibromyalgia meds and gentle massage are often tried for pain management, which can't be fitted into our current structure. The section still looks a lot like the old treatment section. I'd like to move to three subheadings:
Pacing and energy management
Symptom relief (up to one paragraph per symptom, i.e. sleep, pain, orthostatic int, gastro issues, cognitive issues, and mental health effects)
Care for people with severe ME/CFS.
This roughly corresponds to how the CDC covers it (their management page is per symptom, a separate page for caring for severe cases). The German consensus statement has two sections (pacing and symptom relief). The Mayo clinic one has 2 core section (pacing and treat symptoms). The BMJ has ongoing multidisciplenary support as first-line treatment, and pacing and symptom management as adjuncts.
The current discussion of old-school CBT and GET would be merged as a paragraph in pacing. It's a bit duplicative at the moment.
An article on a neurological illness should not be written like this, it doesn't read encyclopedic. Comparison with cancer? What, seriously? Most references are ME/CFS advocacy sites. If it's as serious as cancer and AIDS, how come "Doctors may be unfamiliar with ME/CFS, as it is often not fully covered in medical school" and " No specific lab tests are approved for diagnosis; while physical abnormalities can be found, no single finding is considered sufficient for diagnosis"? Overall, the article overexaggerates the illness. Necatorina (talk) 06:44, 29 June 2024 (UTC)[reply]
The article is based primarily on clinical guidelines from NICE, IqWiG, and the CDC, and on the Mayo clinic and the BMJ sources on the illness. I believe those are the best sources on the illness you can get.
The article doesn't say the illness is worse than cancer and AIDS it says the quality of life of people with the illness is worse than examined cancers and HIV/AIDS. The QoL of AIDS is quite good, given effective medication exists.
It may feel like the article describes a more serious illness than you may be familiar with because of how it's currently defined vs how it was defined 10 years ago. Now, to have even mild ME/CFS, you need a 50% reduction in functional capacity compared to pre-illness. —Femke 🐦 (talk) 06:59, 29 June 2024 (UTC)[reply]
Just to underline, the comparison on QOL is sourced to a peer-reviewed study. Meanwhile, it’s not the case that "Most references are ME/CFS advocacy sites." I only see one such reference in almost 100 sources. Innisfree987 (talk) 07:55, 29 June 2024 (UTC)[reply]
I've replaced the research charity with the CDC. In terms of the how tag, on the mortality from ME, the answer is usually malnutritution as far as I'm aware, but I'm struggling to cite this:
The original source describes the two in the same sentence, but does not make the link. It states: "This can lead to loss of ability to work, the need for care including artificial nutrition and, in very severe cases, even death."
The NASEM long COVID report also doesn't say what people die from. It just says over 5,000 have died without clarifying if they also had ME/CFS or what they died from.
Non-MEDRS, but for context, renal failure from ME has also been noted as a cause of death.
My preference is to remove the tag without using any of these sources. But open to adding something if we can of course. —Femke 🐦 (talk) 18:32, 4 July 2024 (UTC)[reply]
Severe chronic fatigue syndrome should be considered with "central idiopathic hypersomnia" possible comorbidity pathology[edit]
Severe chronic fatigue syndrome should be considered with "central idiopathic hypersomnia" possible comorbidity pathology (both are also "current scientific research pathology unknown and there are sleep disorders" diseases), both are prone to the existence of "drunk every night after sleep" this more significant characteristic, relatively rare characteristics. Moderate to mild chronic fatigue syndrome needs to consider a large number of "common diseases" and "rare diseases" in sleep disorders. Moonlight005 (talk) 04:29, 15 July 2024 (UTC)[reply]
A "severe chronic fatigue syndrome"/hypersomnia pathological hypothesis[edit]
This is an English version of the pathological hypothesis analysis of "severe chronic fatigue syndrome"/idiopathic hypersomnia, which may be more intuitive for English users.
Url:
https://zhuanlan.zhihu.com/p/690767363 or https://weibo.com/ttarticle/p/show?id=2309405033349046731031
The title of the article is as follows:
"Pathology of IH may be hyperlocalized carbon dioxide excess"、"An important subtype of idiopathic hypersomnia (also including idiopathic hypersomnia with unknown pathologies, narcolepsy type 2, hypersomnia depression, etc.) is likely to be the mathematical model and analysis of the pathology of hypothalamus and other parts controlling ultra-small vascular lesions (such as blockage) of the awakening nerve nuclei leading to excessive carbon dioxide in a small range".
This does not seem to be discussed in high-quality review articles, so I do not think it deserves a mention here. It is unclear if these links are to scientific articles or more to a blog-type article. For medical content, sources need to meet the criteria as described in WP:MEDRS, which in summary means they should be recent and secondary (a review). —Femke 🐦 (talk) 18:24, 15 July 2024 (UTC)[reply]